Helping patients and caregivers understand what doctors don't have time to explain.
Most Parkinson's information explains the disease.TooShaky explains what it actually feels like—and how to live with it day to day.This site was built for patients and caregivers who need real answers, not just medical terms.
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Disclaimer: This patient education resource was created by Dawn Howard, Parkinson’s Advocate & Neurological Health Educator, through TooShaky.org, to support individuals newly diagnosed with Parkinson’s disease. Content is informed by lived experience, patient education best practices, and information from established medical, nonprofit, and educational sources. Drafting, editing, and organizational support were assisted by ChatGPT (OpenAI) as a writing and language tool, under the direction and review of the author. Educational content and references are drawn from sources including, but not limited to: Parkinson’s Foundation, The Michael J. Fox Foundation for Parkinson’s Research, American Parkinson Disease Association (APDA), Davis Phinney Foundation, Mayo Clinic, Cleveland Clinic, PubMed, PMC PubMed Central, Peer-reviewed medical literature and clinical education resources. This material is provided for informational and educational purposes only and is not intended to replace individualized medical advice, diagnosis, or treatment. Patients should discuss all medical questions and care decisions with their healthcare provider. TooShaky.org does not provide medical care and does not establish a clinician–patient relationship.